World Sickle Cell Day

Awareness and action will change a curative into a cure!

World Sickle Cell Day  2011 ~ Global Activities

***************California****************

Los Angeles

Press Release

CONTACT: Event Chair Nita Thompson, 323-750-1087

AA4SCDAwareness@aol.com 

NITA T. AND HER GOOD FRIEND KIKI SHEPARD INVITE YOU TO

 THE WORLD SICKLE CELL DAY

JUNE 19TH

AWARENESS CELL-A-BRATION 

Sickle Cell 101: We’re a Global Village!

WHEN: 11:00 AM – 3:00 PM

WHERE: VERMONT SQUARE UMC – 4410 S. BUDLONG AVENUE, LA, 90037

COMMENTARY: Sickle Cell Disease is a painful, life-threatening illness that is thought to affect over 100,000 people in the Unites States and 2 Million people globally.  The illness affects people of every racial and ethnic background.  It is the most frequently occurring genetic disease on earth.  In the United States, the life expectancy for a person diagnosed with sickle cell is 48 years for women and 42 (Updated to 46!) years for men.  Life expectancy is lowest in California: 35 for women and 32 for men.

Our focus this World Sickle Cell Day 2011 is to:

·        Bring awareness and educate the public at large about Sickle Cell Disease and trait

·        Dispel the rumors, and opinions

·        Unite and bring attention to the needs of the Sickle Cell Community

·        Educate and activate people to donate blood and register  Square United Methodist Church, Rev Dr. DiAnn L. Johnson, Senior Pastor.

The event will take place Sunday, June 19, 2011 from 11AM to 3PM at Vermont Square United Methodist Church, 4410 S. Budlong Ave. (at Vernon Ave.) Los Angeles CA 90037.

To donate, RSVP, volunteer, sign up as a blood donor (must have ID), or for more information contact the African American Blood Drive and Bone Marrow Registry for Sickle Cell Disease Awareness, (323) 750-1087.  Chair and event coordinator: Nita Thompson, email AA4SCDAwareness@aol.comP O Box 1275, Inglewood, CA 90308-1275.

To learn more about Sickle Cell Disease, trait or World Sickle Cell Day, please visit: http://www.aablooddriveandmarrowregistry4

sicklecellawareness.webs.com

Event presented by African American Blood Drive and Bone Marrow Registry for Sickle Cell Disease Awareness and Star’s We Are and Associates. A portion of the proceeds will go to The K.I.S. Foundation a 501(c)(3) non-profit organization, & The Dorothy H. Shepard Scholarship Fund for Scholarships to students diagnosed with Sickle Cell Disease.

Opportunity Ticket Items ~  Congratulations Winners!!!

 

2 Grand prizes choice of:

tickets to: American Idol Live ($130 Value) ~ J. Brown

Or

4 tickets to LA Galaxy VS FC Dallas ($140 Value) ~ L. Littlejohn

Also have: 2 sets of tickets to

2 tickets to - Knott’s Berry Farm ($71.98 to $92.98 Value) ~ Leatha

2 tickets to - Knott’s Berry Farm ~ E. Kindle

2 tickets to – LegoLand ($128 to $170 Value) ~ J Brown

2 tickets to – LegoLand ~ Leatha

Glass Ice Tea Set ~ E. Kindel

Bone Davis CD ~ E. Kindel

Donation: $1 – 3, $5 – 8, $10 – 14, $20 – 25 tickets

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Celebrate World Sickle Cell Day with CHLA on June 25, 2011, Noon to 3pm at the California African American Museum (CAAM).  Lunch and Activities!  Please RSVP by calling 323 361-7230 today!  To view the PDF invitation please go to our Document page.

 

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Fort Myers, FL

Faces of Sickle Cell Disease

htp://facesofscd.org/default.aspx

When: Sunday June 26, 2011 from 1pm until 5pm

The Escape Zone in Fort Myers has offered to sponsor an event Sunday June 26, 2011 for us in commemoration of World Sickle Cell Awareness Day. It will begin at their business on Cleveland Avenue, across from Page Field. Roller skating, indoor activities, and an outdoor waterslide will be free for all children with Sickle Cell and adult patients. Be sure to remember to bring your swimsuit. They will supply pizza, unlimited drinks and cake for everyone. We hope this will bring families together to enjoy the day. Come on out to enjoy the fun. Remember all is free except for arcade games.

You can sign up by calling Victoria Frittitta at 239-822-6175 or the Fort Myers Sickle Cell Association leader Pam Goldsmith-Denson at 239-810-7918. We hope to see you there!

When: Sunday June 26, 2011 from 1pm until 5pm

The Escape Zone in Fort Myers has offered to sponsor an event Sunday June 26, 2011 for us in commemoration of World Sickle Cell Awareness Day. It will begin at their business on Cleveland Avenue, across from Page Field. Roller skating, indoor activities, and an outdoor waterslide will be free for all children with Sickle Cell and adult patients. Be sure to remember to bring your swimsuit. They will supply pizza, unlimited drinks and cake for everyone. We hope this will bring families together to enjoy the day. Come on out to enjoy the fun. Remember all is free except for arcade games.

You can sign up by calling Victoria Frittitta at 239-822-6175 or the Fort Myers Sickle Cell Association leader Pam Goldsmith-Denson at 239-810-7918. We hope to see you there!

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*Atlanta, GA

 World Sickle Cell Awareness Day: Educate and Unite - June 23-24, 2011

The Sickle Cell Disease Association of America (SCDAA) and the Centers for Disease Control and Prevention (CDC) cordially invite you to join us in the celebration of World Sickle Cell Awareness Day to be held June 23 - 24, 2011 at the World Congress Center in Atlanta, GA.
 
The theme of World Sickle Cell Awareness Day: Educate and Unite highlights the need to increase awareness of the global impact of sickle cell disease(SCD) and the importance of uniting global support for promoting and improving the health of persons with SCD through "increasing global action to reduce child mortality in SCD."
 
The celebration will begin on Thursday, June 23rd with a national press conference and private reception.  It will culminate on Friday, June 24th with presentations by a number of SCD experts and panel discussions with several international representatives.

http://www.sicklecelldisease.org/sicklecelldisease/uploads/File/World_Sickle_Cell_/%20Awareness_Day_Agenda_5-11.pdf to see full agenda.

Register today by visiting here:  http://scdworldday.eventbrite.com/.

 

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 Indianapolis, IN

June 25, 2011 -The 15th Annual Sickle Cell Walk/Run is on June 25th.  The registration starts at 7am and the race starts at 8am at Riverside Park/Family Center here in Indianapolis, IN. Martin Center, INC. 3545 N. College Ave. Indianapolis, IN 46205  317-927-5158 phone

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Boston, MA

 

Sickle Cell Group Hosts Free Community Health Fair


(Boston, MA) More than 5000 people are expected to converge on Franklin Park when the Greater Boston Sickle Cell Disease Association (GBSCDA) hosts the Sickle Cellabration in the Park on Saturday, June 18, 2011 in commemoration of World Sickle Cell Day.

Through a partnership with dozens of hospitals, local Community Health Centers and mobile medical units like El Shaddai Dental Associates and the Family Van, hundreds of families will receive free medical health screenings, massages, and demonstrations on aspects of healthcare and exercise. As part of its efforts to increase the number of minority blood and bone marrow donors in this region, GBSCDA is also partnering with the American Red Cross and Be The Match Bone Marrow Registry as blood transfusions and bone marrow transplants have proven effective in treating patients with Sickle Cell Disease (SCD). Cedric King says, “this will be New England’s premier health fair – it’s absolutely free to the general public, so all are welcome”.

GBSCDA is a growing and dynamic organization at the forefront of sickle cell disease awareness in Northern New England. It provides support services and programs, including 24 hour on call beeper service to support patients during emergencies; support group meetings; patient advocacy; Chaplaincy Visits; Transportation Voucher Program to assist patients with transport from any local hospital after medical discharge to home; and a Juice/beverage Voucher Program to assist patients with issues of dehydration.
GBSCDA also facilitates referrals to hospitals and agencies involved in the provision of health care and social services to sickle cell patients; provide a Therapeutic Music Lessons Program (piano, violin, drums) as an alternative therapy to help patients better cope with sickle cell disease; Educational Scholarships to help selected patients with sickle cell disease with their pursuit of a college education; Tutoring (Elementary-High School); Annual Summer Bus Trip for children with sickle cell disease; Annual Christmas Party and other recreational activities, and the publication of the Sickle Cell Connection Newsletter.

With its motto, “Together we can ease the pain” GBSCDA partners with several leading hospitals including Children’s Hospital Boston, Brigham & Women’s Hospital, Tufts Medical Center, Dana Faber Cancer Institute, and Boston Medical Center. GBSCDA also works with organizations such as the New England Pediatric Sickle Cell Consortium and the Hole in the Wall Gang Camp to provide raise awareness through educational seminars pertaining to sickle cell disease and sickle cell trait, and through community outreach. GBSCDA also seeks to address the gaps in knowledge about sickle cell disease through educational campaigns. Finally, GBSCDA serves as a liaison between patients and health providers, educates providers about the specific needs of the sickle cell disease community, and helps increase the use of preventive and primary care services within this patient population.

Founded in 1995 by Ronald Stephenson, who was moved to address the lack of SCD awareness, GBSCDA provides advocacy and support services for patients in Massachusetts with SCD. The programs that GBSCDA provides to its members, free of charge, and play a key role in the sickle cell survivors’ emotional, psychological and physical healing. It costs GBSCDA $1,000 per member annually to adequately serve their needs. Sickle Cellabration in the Park is designed as an extensive educational campaign, to expand the membership of the organization and to bring the community together to raise awareness of sickle cell disease and significant funding for GBSCDA’s programs and services. Dr. Patricia “Trish” Kavanagh, Chair of the GBSCDA Executive Board says, “This is a wonderful collaborative effort. With the community working together, we can break the sickle cycle of pain and despair that usually attends the many crises suffered by our members.”

The day will also feature music and entertainment, fun and game activities for the whole family, raffles and prizes, a variety of vendor provided food, snacks and treats, arts and crafts stations and an abundance of other community resources.

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Future events include the GBSCDA’s First Annual Golf Outing – an exciting day of golfing and fine dining – to be held Thursday, July 21, 2011, from 10am to 6pm at the River Bend Golf Club, West Bridgewater, MA.

Donations toward this cause are most welcomed. The Greater Boston Sickle Cell Disease Association is a 501(c) 3, as such, all contributions are tax deductible to the fullest extent of the relevant IRS laws and regulations.


For additional information, please contact:
Jackie Haley or Cedric A. King
Greater Boston Sickle Cell Disease Association
1542 Tremont Street
Boston, MA 02120
Phone: (617) 427-4100
Email: info@gbscda.org

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Texas

http://theotisfoundation.org/news.html

Sunday, June 19, 2011
World Sickle Cell Day

This year marks the 3rd annual celebration of "World Sickle Cell Day". On December 18, 2008, the United Nations adopted a resolution that declared June 19th as "World Sickle Cell Day" and called for the recognition of sickle cell disease as a public health problem and one of the world’s foremost genetic diseases. Celebrate "World Sickle Cell Day" by making a donation, joining our volunteer team, wearing your "Sickle Cell Family Day" t-shirt, and helping to spread the word about our organization! Join us on Facebook and share our website with family and friends.

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*Newark, N.J.

The Sickle Cell Association of New Jersey (SCANJ). Our website is www.sicklecellnewjersey.org.
I can be reached at 973 482-9070 or via email
sicklecellanj@gmail.com

We just had a fantastic World Sickle Cell Disease Day Commemoration. Over 130 attendees enjoyed scd workshops, a children's museum exclusively for our use, breakfast and lunch.

On sunday we had Sickle Cell Sabbath at Shiloh Baptist Church in Newark, NJ.

All the best! Mary Bentley LaMar Founder and Executive Director.

***************Africia

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*Abuja and Kafanchan, Nigeria

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*Sierra Leone 

Nigeria

http://www.migration4development.org/content/world-sickle-cell-day-2011

world sickle cell day 2011

Document type: Presentation

A consortium is born to spearhead the sickle cell screening project in Nigeria

Details

Focus area: 
Creating sustainable networks amongst migrant communities for development
Thematic area: 
Diaspora engagement
Related countries: 
Africa
Date published: 
2011
Parent project: 
 
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Uganda

http://uganda-americansickle.org/?p=354

http://uganda-americansickle.org/wp-content/uploads/2011/04/cerebrate2.jpg

Uganda-American Sickle Cell Rescue Fund (UASCRF) has managed to open local office in Kampala, Uganda to expand our presence in local sickle cell communities of Uganda and looking to join other local organizations with the same cause. UASCR begin every day committed to excellence and finding fulfillment in what we do. Most importantly,  to change the face of sickle cell disease in Uganda and a health life of those affected by sickle cell disease. Our newly formed NGO called Uganda sickle cell Rescue web site: http://ugandasicklecellrescue.com/   in conjuction with USCRF has organized the event to celebrate the World Sickle Cell Day. Please join us as Uganda Sickle Cell Rescue Celebrates “World Sickle Cell Day June 19th” at the Sickle Cell Clinic at Mulago Hospital, Kampala, Uganda. Due to the weekend timing, the event will take place on June 18th  strating at 0900 am. It is free. Refreshments and entertainment will be provided. Sponsored by  UASCRF.

RSVP to +256-713500640 or ckato@ugandasicklecellrescue.com

The world Sickle Cell day is celebrated across the globe with special emphasis in African Nations and Asia. The celebrations include a press, media campaigns, music shows, cultural activities, and talk shows.  ……The main goal is to prevent further complications due to sickle cell disease”….read more: http://www.altiusdirectory.com/Society/world-sickle-cell-day.php

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Canada

 

 

 

 

 

 

 

 

 

*Alberta

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 Ontairo

June 19, 2011 World Sickle Cell Day –

The Sickle Cell Association of Ontario Celebrates the 3rd Anniversary of World Sickle Cell Day Sunday, June 19, 2011  Guest Speakers on Social Determinants of Health: Dr. Lee Ford-Jones, Hospital for Sick Children  World Renowned Sickle Cell Researcher: Dr. Graham Serjeant, MD, PhD from U.W.I of Jamaica  Location: Sts. Peter & Paul Banquet Hall 231 Milner Avenue Toronto, ON M1S 5E3  Time: 3:30pm  $50 advance tickets until May 31, 2011, $55 thereafter $25 for Children 12 and under SAVE THE DATE Check our website for more information. www.sicklecellontario.com or call 416-789-2855.

 

 

 

 

 

 

 

 

*Toronto

 

 

 

 

 

 

 

 

 

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INDIA

*Chhattisgarh

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Calicut, Kerala

Blood Patients' Protection Council observed one day fast on World Sickle Cell Disease Day    (19thJune2011Sunday)

          Kozhikkode. The Blood Patients' Protection Council (BPPC) observed an one day fast in front of the Kozhikkode Medical College hospital on the World Sickle Disease Day on19th June 2011Sunday.The fast was observed to invite the attention of the newly elected state Government to the grave plight of patients suffering from blood related ailments like Sickle cell anemia,Thalassaemia,Haemophilia and Leukemia from the north Kerala.INDIA.Prior to the fasting the kith and kin of patients conducted a protest march at the Kozhikkode Medical College Hospital. More than one hundred patients and their parents vehemently participated in the protest march.

                                                         Kareem Karassery General convener of the Blood Patients Protection Council inaugurated the fast.M.Muhammed Ershad, a parent of Sickle Cell Disease afflicted child presided over the function.

                                                         After the fast a team of patients and their parents of the agitators led by Kareem Karassery submitted a memorandum to the principal of Medical college hospital Kozhikkode.The eleven point demand comprising setting up a hematology oncology departments at Kozhikkode MCH,free treatment for  all the acutely ill patients barring age and their income,anti-natal diagnostic facilities for genetic disorders, cord blood bank and bone marrow transplantation facilities, free treatment to the patients from other state, Minimum Two Lakh rupees relief aid to patients who lose their lives or any organ due to the neglect or error in treatment, monthly pension of Rs.3000 to people suffering from acutely blood related diseases

                                                         Council also submitted a list of eleven adolescents SCD patients with the memorandum who were died in recent months following the lack of expert treatment at Medical college hospital. A twenty year old youth's death occurred in the World Sickle Cell Disease Day, also included in the list. The copy of the memorandum with the list of eleven deceased Sickle cell anemia patients also submitted to the chief Minister, Health Minister, opp.leader of Kerala.

 

Kareem Karassery

General Convener

Blood Patients' Protection Council (BPPC)

Phoenix Sailam

P.O.Karassery

Via. Mukkam

Calicut. 673602

Kerala.  INDIA

Email.bppckerala@gmail.com

Email.kareemkarassery@gmail.com

 

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Oman

*Sultanate of Oman 

 

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*London, United Kingdom