World Sickle Cell Day

Awareness and action will change a curative into a cure!

World Sickle Cell Day  2010 ~ Global Activities

 ********************United States************************

Los Angeles, CA 

CHLA is hosting the Los Angeles event this year!!!

Celebrating our 100 year journey together

June 19, 2010

12:00-3:00 PM

Childrens Hospital Los Angeles Healing Garden

Celebrating...Patients and families, Medical Care excellence, Research, Community partnerships

Parking $4.00, lunch & activities: Free 

 Let's join together to promote awareness about sickle cell disease while celebrating the lives of those affected and learning about medical research, comprehensive care, and community partnerships.

 A complemtary lunch will be served as our families affected by sickel cell disease share their many talents in song, poetry, and comedy.

Please RSVP as space is limited.  323-361-7230 by May 31, 2010

Childrens Hospital Los Angeles (CHLA)

4650 Sunset Blvd.
Los Angeles, CA 90027

Phone: (323) 660-2450

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June 19th The African American Blood Drive and Bone Marrow Registry for Sickle Cell Disease Awareness has been invited to attend Juneteenth activities throughout Los Angeles including park gatherings and at the California African American Museum (CAAM).  We will be speaking to community members about World Sickle Cell Day, our 2010 Activities and registering marrow!

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San Francisco, CA

In honor of World Sickle Cell Day, on June 18th between 11:30 - 1:20pm the African American Coalition is giving a presentation on Sickle Cell at the California Public Utilities Commission at 505 Van Ness Ave., San Francisco, CA.  We are highlighting sickle cell disease during our Juneteenth celebration. 

We have been invited to give our WSCD Presentation to the audience!!!

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New Britain, CO

http://www.newbritainherald.com/articles/2010/06/13/news/

doc4c1578daddcd8049477146.txt

Area group looks to raise Sickle Cell Anemia awareness

The New Britain-based group Citizens for Quality Sickle Cell Care is a nonprofit partner in the health center’s new adult sickle cell disease program. The program also includes clinical trials and lab research.Andemariam is partnering with New Britain-based Citizens for Quality Sickle Cell Care and the Department of Public Health to encourage screening and raise public awareness about potential risks associated with being carriers of the sickle cell trait.

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Washington, DC

http://www.clipsyndicate.com/video/play/1523416   WTTG FOX 5 Washington, DC

June 19th is Sickle Cell Awareness Day. Sickle cell disease affects people all over the world it has now also been 100 years since sickle cell disease was recognized by the medical community. FOX 5 reporter, Gurvir Dhindsa profiled two remarkable youths that have been living with sickle cell disease all or most of their lives. [www.clipsyndicate.com | WTTG FOX 5 Washington, DC]

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DC: Join us for the SCANCA annual BBQ to commemorate World Sickle Cell Awareness. Sunday June 13. Fort Washington National Park, Fort Washington, MD. More information on the website: http://www.scancainc.org/ 

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Fort Myers, FL

Race for Awareness

Faces of Sickle Cell Disease will be sponsoring a free kick off event in honor of World Sickle Cell Day.  Come and have a free photo taken in our Sickle Cell Theme race car - a late model car owned by Richie Anderson, #51. 

When: June 19, 2010, Between 12 noon and 3 pm
Where: Stevie Tomato's Sports Page 11491 S Cleveland Avenue, Fort Myers, FL 33907

Free Refreshments will be provided
Free prizes will be given
Win a bike - once you sign in at the event, your child will be entered in a chance to win a free bicycle.

Please RSVP with Victoria Frittitta  at  Victoria.Frittitta@facesofscd.org

http://facesofscd.org

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Atlanta, GA

Advocacy Group For Adults With Sickle Cell Anemia I would like to meet all of you who live in the Atlanta area on World Sickle Cell Day (June 19th) at the APEX Museum. We will be celebrating that day by bringing awareness to the blood disorder. SCD Soldier Network will be doing a memorial balloon release in honor of those who have lost their battle with SCD.

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Atlanta, GA, Chicago, IL, Dallas, TX, and New York, NY 

In June 2010, Preserve Our Legacy Inc. (POL) will launch its First Annual Jaden’s Walk.

Jaden’s Walk is a national event that will be launched in Atlanta, on June 19, World Sickle Cell Day and travel across the country to multiple cities including Chicago, New York and Dallas, TX. New York will host the walk, along with a Red Carpet Banquet and Celebrity Basketball Event. This event will be unlike any other, bringing together families, friends and sponsors to make each city the home of the greatest fundraising events to build awareness about adult stem cells to help thousands of adults and children living with diseases such as Leukemia, Sickle Cell, Diabetes, and more. In addition, we will create awareness about the need for donors as well as register as many as possible to the national marrow registry.

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Oklahoma, OK

Oklahoma's World Sickle Cell Day Event

Oklahoma's worldwide sickle cell day on

JUNE 19TH AT THE BOX CENTER!  RESERVE YOUR TICKETS TODAY

Come support the Supporters of Families with Sickle Cell Disease and the Tulsa Shock in it's

2nd annual fundraiser. The purple balloon release will be at 1:00pm in front of the BOK Center.

Each ticket includes admission to the 2nd annual Tulsa Police Department VS Tulsa Fire Department basketball game at 2p.m.

In addition, each ticket also includes admission to the Tulsa Shock vs. the Minnesota Lynx game at 7p.m. Both will be played at the BOK Center!

Event price $15, Walk-Up Price $21.  Every ticket purchased, $5 dollars will be donated back to the Supporters of Families with Sickle Cell Disease.

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Harrisburg, PA

http://www.pahouse.com/PR/186061610.asp  June 16, 2010 HARRISBURG, June 16 – State Rep. Kenyatta Johnson, D-Phila., said the House this week unanimously adopted his resolution (H.R. 846) designating June 19 as Sickle Cell Awareness Day in Pennsylvania.

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Edison, NJ,

On June 19, attendees of Sickle Cellabration can expect educational workshops for families, enjoyable activities for kids, exhibits and the Cellabration Luncheon that honors children in the New Jersey Sickle Cell Poster Child Program.   There will also be the Dr. Charles Drew Commemorative Blood Drive from 9am to 3pm.

For more information, please contact Mary Bentley LaMar at 973.482.9070 or sicklecellanj@ gmail.com.

You may also log onto sicklecellabration.org.  Seating is limited so please RSVP for this FREE event by  Friday, June 11.

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NEWARK, N.J.

http://www.thestreet.com/story/10771039/workshops-poster-child-program-dr-charles-drew-blood-drive-will-be-held-in-new-jersey-to-commemorate-world-sickle-cell-disease-day.html

June 1 /PRNewswire-USNewswire/ --

Workshops, Poster Child Program, Dr. Charles Drew Blood Drive Will Be Held In New Jersey To Commemorate World Sickle Cell Disease Day

The Sickle Cell Association of New Jersey (SCANJ) and Embrace Kids Foundation will team up to host Sickle Cellabration on Saturday, June 19, 2010. Attendees at this free event can expect educational workshops on sickle cell disease for adults, activities for children and teens, informative exhibits, and a luncheon to announce the designated spokespersons for the New Jersey Sickle Cell Poster Child Program. In addition, the American Red Cross will also have a blood drive mobile on site.

Sickle Cellabration will take place from 8 a.m. to 2:00 p.m. at The Pines Manor in Edison, New Jersey. Among the scheduled speakers are Dr. Alice Cohen, Director of the Division of Hematology and Oncology at Newark Beth Israel Medical Center, Beth Savage RN, Pediatric Sickle Cell Division of Robert Wood Johnson Hospital and Ediomi Utuk, Founder and CEO of Converse 4 a Cure; a sickle cell awareness organization. Seating is limited, so please register with your RSVP by Friday, June 11. To register, log onto http://www.sicklecellabration.org/; or email sicklecellanj@gmail.com; or call 973-482-9070.

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New York, NY

The Be Sickle Smart Empowerment Tour will be in NY for World Sickle Cell Day.

Embassy Suites Hotel
102 North End Avenue
New York, NY 10282
212-945-0100

Visit the following site to see where they have been and where they are going:

50millionpounds.com/the_challenge/be_sickle_smart/empowerment_tour.aspx

************************************Africia*********************************

Abuja and Kafanchan, Nigeria

Telephone: +447919597783 - Fax: +441923859914 - Email: nigeriasicklecohort@gmail.com

2010 Sickle Cell Day Celebration-Centenary Events

18 June 2010 at Kafanchan, Kaduna State.

LFSCA, Zankli and Fantsuam Foundation jointly respectfully request the pleasure of:

To the Centenary sickle cell day celebration in Kaduna State. The events is to raise awareness about this condition, to give hope to those affected and their families and launch the Kafanchan Sickle Cell Clinic

Events: 1000 -1400

Special Guest of Honour: His Excellency, the Executive Governor, Kaduna State, Mr Patrick Yakowa

Special Guests - Their Royal Highnesses, Dr Harrison Bungwon, Agwatiyap, Mr Nuhu Bature, Agwam Bajju and Mr Kabile Ibrahim, Agwom Akulu; Hon Nenadi Esther Usman, His Lordship Bishop Bagobiri, Rev Fr Matthew H Kukah.

Chief Hosts: Their Royal Highnesses, Mr Ufuwai Bonet, Agwam Agworok, Alhaji Muhammad Isa Muhammad, the Emir of Jema’a, Jema’a Local Government Chairman, Barrister Gideon Morik and Kaura LGC Chairman, Barrister James Kanyit

Events include drama in schools by the Theatre Arts Department, College of Education, Kafanchan, Film Show, Voluntary screening and Radio panel discussion

Events: 1400-1700

Launch of the Kafanchan Sickle Cell Clinic: The Hon Commissioner of Health Kaduna State, Director, Hospital Services, Kaduna State, (Dr Paul Dogo), Medical Director, Kafanchan General Hospital, (Dr Samson Dogo), and Provost Kaduna State College of Nursing, Kafanchan, (Mr Zogale).

Radio Panel Discussions on 16th June, KSMC: Mrs P. Akaas, Alhaji Audu Barau, Mrs Victoria Gambo, Dr Victor Gugong, Mrs Paulina Sheyin, Deacon Layi Adisa, Salamatu Hassan and Mrs Leah Kyari

The project is supported by the Sickle Cell Foundation of Nigeria, Nigeria Sickle Cell Cohort (NISCOR), EC-UNDP, Michigan State University and Kaduna State, Total Nigeria Ltd.

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Telephone: +447919597783 - Fax: +441923859914 - Email: nigeriasicklecohort@gmail.com

2010 Sickle Cell Day Celebration-Centenary Programme

18 June at Kafanchan, Kaduna State and 22nd and 24th June Abuja.  

MAIN ACTIVITIES

Testimonies Stand exhibition by patients and carers

Drama / Film on Sickle Cell Anaemia

Genetic Counselling

Voluntary Screening

Round Table Panel discussion

Review and Perspectives of sickle cell disease research

1 Effective strategies: role of the sickle cell dedicated centres and research, Kafanchan and Wuse

2 Nigeria Sickle Cell Cohort Study- Progress and Prospects, Abuja and Kaduna State

DATE AND PLACE:

18th June 2010 – Kaduna State College of Nursing, Kafanchan

19th June 2010- Federal Secretariat, Abuja

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http://234next.com/csp/cms/sites/Next/Home/5582603-146/sickle_cell_kill_4000_in_anambra.csp?CSPCHD=000000010000415wt8fo0000006k1OPelF3kzKX2mkc9KbWA--

 

Sickle cell kill 4,000 in Anambra yearly

 June 21, 2010 12:43AM

 

She disclosed this on Saturday at the celebration of the 2010 World Sickle Cell Day in Awka, a celebration which theme was “Awareness, Education and Hope.”

Mrs. Umera-Okeke, who said the disease was a major challenge facing humanity in general and Nigeria in particular, noted that there was a need to create elaborate awareness of the problem.

“The necessity to create awareness for everyone to know their genotype is of utmost importance for us to see if the prevalence rate of the disease in the state could reduce,” she said.

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http://cicelyinnigeria.blogspot.com/

 

Rural Nigeria - ambitiously marking UN sickle cell awareness day

Did you know that 19 June (tomorrow) is Global Sickle Cell Centenary Celebration?  No, neither did I and neither, till today, did Kaduna State.

 

However Fantsuam Foundation has changed that.

 

I'm really proud to be part of this organisation that sees a need, respond to it, motivates people and makes something big happen.

 

Read on!

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http://www.zeenews.com/news634708.html

 

Mobile clinic for sickle cell anaemia patients in Chhattisgarh

 

Raipur: Chhattisgarh Government is starting a mobile clinic for sickle cell anaemia patients in the state, official sources said Thursday.

Chief Minister Raman Singh will inaugurate the mobile clinic on June 19, the World Sickle Cell Anaemia Awareness Day, at the B R Ambedkar Hospital.

 

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 Sierra Leone 

 

UN International Sickle Cell Day 2010 on 19th June 

 

 Posted by Sahr O Fasuluku at 12:35pm on May 28th, 2010

 

 SCCAN APPEAL to SUPPORTERS AND MEMBERS FOR URGENT ACTION
(Please circulate and act now)

In preparation for the 19th June

The plan is that we arrange for volunteers to give out leaflets together with 500ml sealed plastic bags of clean filtered drinking water (known as 'two tik' and usually sold) on the streets of Freetown, Koidu and anywhere else we can arrange at short notice. Giving away free water on a hot day will attract a lot of attention on the streets and our leaflets will explain briefly why clean drinking water and hydration are vitally important for the survival of sickle cell sufferers and for general health (killing two birds with one stone; thanks for the inspired idea CEO) and could get us press, radio and TV coverage. The leaflets will be A6 size (one quarter of A4) and will give our brief 4 point information on sickle cell our ‘all it takes’ message and brief contact details (to recruit volunteers and support).

We need urgent assistance getting partner support;
KONSU students have expressed an interest. They have been very successful in past years in raising funds for, gaining support for, and putting on events to mark World Aids Day on December the 1st. They have in the past gone around Freetown to raise funds, organise rallies and give out leaflets. This is what we will ask them to do for us. Melvin in Freetown will have to do some running around and get assistance to see if he can get support for this.

2. I believe these below are the organisations active in  who are concerned with water supply and sanitation.
UNICEF, UNHCR, EU, NaCSA. IRC, Tearfund. ECHO, OXFAM, OFDA, ACF, RPDA, ICRC, PWJ, COOPI, DFID, CRP, Cause Canada, CARE

I’d like to draft a letter (enclosing UN and WHO resolutions on sickle cell anaemia) to all of their regional offices and head offices in Sierra Leone and email copies to their international HQ country desks (Sierra Leone/Africa), to health and other ministries, and to health NGO’s asking for their support in marking UN International Sickle Cell Awareness Day on 16th June. This will have the effect of;
A. A hopefully gaining last minute resources from them to help our planned events
i. Filtered clean drinking water in 500ml sealed plastic bags x 2000 to give out with our leaflets
ii. Leaflet printing and paper
iii. Personnel and transport
B. Raise awareness inside these organisations of sickle cell anaemia and their need to make provision for these conditions inside their programmes.

We need urgent assistance to get contact details (addresses telephone and email) for the above in Sierra Leone.

Please circulate this NOW to anyone you know who might agree to help in any small way. And you can donate to this event at http://www.justgiving.com/international-sickle-cell-day

 

********************************Canada******************************

Alberta

http://www.omniab.ca/community/index.php?id=822&c=edmonton

World Sickle Cell Day

Date: Saturday, June 19

·  In 2001, the Sickle Cell Foundation of Alberta was founded as a non-profit organization to raise public awareness about sickle cell anemia. The foundation focuses on

·  Increase awareness of in the community of the burden of these disorders;

·  Provide support to patients and families whose lives are touched by sickle cell anemia

·  Promote and support research to improve quality of life for those affected.

·  Safe blood donation

June 19, 2010 has been named World Sickle Cell Day. It marks 100 years since James Herrick’s first decription of the disease.   In honor of this day, the Sickle Cell Foundation of Alberta would like your support with donations that will go towards research for the treatment and prevention of sickle cell disease and other haemoglobinopathies. We are also interested in supporting causes that are dear to you. If you have any questions or would like additional information, please contact us at (780) 450-4943.  Send email inquiries to scfoa@shaw.ca or visit our website at http://www.sicklecellfoundationofalberta.org/.

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Toronto, Ontairo 

World Sickle Cell Day Celebration on Saturday June 19, 2010, 6:30pm - 9:30pm  at Delta Toronto East 2035 Kennedy Road Toronto, ON M1T3G2.   

This year’s activities include a presentation by keynote speakers, followed by a panel discussion emphasizing the growing health problem.

Tickets are available for $40 & Buffet Included!!!   Parking available at $15

Call the Sickle Cell Association of Ontario 416-789-2855

Email sicklecell@look.ca or email info@sicklecellontario.com

Visit us on the web http://www.sicklecellontario.com/

 ***********************INDIA***********************************

Chhattisgarh , India

http://www.zeenews.com/news634708.html

Raipur: Chhattisgarh Government is starting a mobile clinic for sickle cell anaemia patients in the state, official sources said Thursday.

Chief Minister Raman Singh will inaugurate the mobile clinic on June 19, the World Sickle Cell Anaemia Awareness Day, at the B R Ambedkar Hospital.

Sickle cell anaemia is a disease of red blood cells that is passed from parent to child. People with this disease have sickle hemoglobin, a protein of the red blood cells which is different from normal hemoglobin. "Sickled cell" gets stuck in the tiny blood vessels, blocking the flow of blood and causing pain.

The project would be run by the Pandit Jawaharlal Nehru Government Medical College.

The clinic, having a doctor, a counsellor and technician, would be equipped with all relevant machines, tools and medicines, P K Patra, Head of Bio-Chemistry Department at the college, said.

Under the project, the clinic would visit schools and screen children. The students will be given information and basic treatment to those affected. If required, the affected children would be referred to medical experts for further treatment, he said.

*************************Oman*********************************

·  Sultanate of Oman

·  http://sewchicandunique.com/2010/06/worlds-sickld-cell-day/

 

 

World Sickle Cell Awareness Anaemia Day

Help raise the awareness. Please come and show your support on Saturday the 19th of June 2010, at Muscat City Centre Al Seeb, starting an 10.30 – 21.30.

There will be

1- Free educational sessions
2- Bazar; second hand books,mugs,pens,plant pots and a potograpy gallery.
3- Brochures will be distributed
4- Face painting
5- Give away balloons

Let us join together and show that we care..because together We CAN DO IT!

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http://www.zawya.com/Story.cfm/sidZAWYA20100617040649/Oman%20to%20mark%20World%20Sickle%20Cell%20Anaemia%20Day/

Oman to mark World Sickle Cell Anaemia Day

 

 17 June 2010
MUSCAT -- Recent studies conducted pertaining to the stretch of the Sickle Cell Anaemia show that around 6 per cent of the Omani society is either patients or carriers of Sickle Cell genes. Children are more susceptible to Sickle Cell Anaemia and Thalassemia Major.

In Oman, the OHBDA will spread awareness on this fatal disease on Saturday and Sunday at Muscat City Centre in Seeb under the auspices of Dr Mohammed bin Saif al Hosni, Under-Secretary of Health Affairs, Ministry of Health.

By Kabeer Yousuf   © Oman Daily Observer 2010 

 *********************United Kingdom******************************

London

Saturday, 19th June 2010 – The second World Sickle Cell Day Celebration Event will be hosted by Mr. Trevor Phillips OBE.  Invitations will be sent out to relevant parties in due course.  Feel free to contact us for more information.

Sickle Cell Society

54 Station RD

London, NW 10 4 UA 

United Kingdom

Tel 020 8961 7795

Fax 020 8961 8346    

Email: info@sicklecellsociety.org

http://www.sicklecellsociety.org/