Thank you for visiting the World Sickle Cell Day (WSCD) website. Many people have worked tiredlessly to make WORLD SICKLE CELL DAY happen! Our Sickle Cell Community thanks each and every one them. We will continue to assist, by inviting our Sickle Cell Community to join in and share their individual WSCD activities, events, pictures, etc. * Please right click on any of the flyers to copy and paste or download the PDF. **Please let others know about this website, so they can benefit from the information. We ask that you please email us what you are doing and your pictures, so we can post it/them on this site and share it for all the world to see. Thank you! A bit of factual information:
Many people have worked tiredlessly to make WORLD SICKLE CELL DAY happen! Our Sickle Cell Community thanks each and every one them.
We will continue to assist, by inviting our Sickle Cell Community to join in and share their individual WSCD activities, events, pictures, etc.
* Please right click on any of the flyers to copy and paste or download the PDF.
**Please let others know about this website, so they can benefit from the information.
We ask that you please email us what you are doing and your pictures,
so we can post it/them on this site and share it for all the world to see.
A bit of factual information:
World Sickle Cell Day and Sickle Cell Disease Awareness Month are NOT the same.
World Sickle Cell Day is celebrated in June, is actually on June 19th of each month, is recognized globally and was created by the United Nations by resolution. People will celebrate it on different days and in different ways, because the next time June 19th will be on a Saturday is in 2021!
In the United States, Sickle Cell Disease Awareness Month is in September, is not recognized in every state, and is not recognized globally! It is created by State representatives voting to recognize it in their individual state.
Sickle Cell awareness not recognized by all countries, globally.
Through advocacy of the Sickle Cell Disease International Organisation (SCDIO), the support of the Republic of Congo and the Republic of Senegal, and the commitment in the scientific world, the African Union (in 2005), the UNESCO (2005), WHO (2006), and the United Nations (2008) recognized sickle cell disease as a public health priority. The 19 of June, has been chosen to celebrate every year the World Sickle Cell Day in order to raise awareness of the disease in the world.
Important frameworks for cooperation and partnership, these recognitions should lead to more concrete actions and are to be supported by strengthened partnerships at national, regional and international levels.
Sickle Cell Disease (SCD) is the most frequent genetic disease worldwide. It is present on four continents: in sub-Saharan Africa and in the Maghrib, in Asia (Middle-East, Arabic peninsula, India), in the Americas, on the North (USA), centre (Guatemala, Caribbean islands), and on the South (Brazil,Surinam, Guiana), in Southern Europe (Southern Italy and Sicily, Greece, Turkey). It is estimated that 500.000 are born every year with this severe and invalidating condition and that 50% of them will die before the age of 5 years. Trans-continental, SCD is also trans-ethnic and affects black populations from African origin and Arabic, Indian and Caucasian populations from Southern Europe.
United Nations A/63/L.63
General Assembly Distr.:Limited
18 December 2008
Agenda item 155
Recognition of sickle-cell anaemia as a public health priority Angola, Austria, Belgium, Benin, Brazil, Cameroon, Cape Verde, Central African Republic, Comoros, Congo, Côte d’Ivoire, Democratic Republic of the Congo, Djibouti, France, Gabon, Ghana, Monaco, Senegal,
Recognition of sickle-cell anaemia as a public health problem
The General Assembly,
Recognizing the need to promote better physical and mental health, bearing in mind the Universal Declaration of Human Rights1 and other relevant human rights instruments,
Welcoming World Health Assembly resolution WHA59.20 of 27 May 2006 and resolution 33 C/22 of the General Conference of the United Nations Educational, Scientific and Cultural Organization of 19 October 2005, and taking note of decision AU/Dec.81 (V) adopted by the Assembly of the African Union at its fifth ordinary session, held in Sirte, Libyan Arab Jamahiriya on 5 July 2005,
Recognizing that sickle-cell anaemia is one of the world’s foremost genetic diseases, that it has severe physical, psychological and social consequences for those affected and their families, and that in its homozygote form it is one of the most lethal genetic diseases,
Aware of the need for greater international cooperation, including through partnerships, to facilitate access to education, management, surveillance and treatment for sickle-cell anaemia,
Recognizing that proper management of sickle-cell anaemia will contribute to an appreciable decrease in mortality from malaria and in the risk of HIV infection,
Recalling the Abuja Declaration to Roll Back Malaria in
Taking note of the reports of the first, second and third international congresses of the Sickle-Cell Disease International Organization, held in Paris on 25 and 26 January 2002, in Cotonou from 20 to 23 January 2004 and in Dakar from 22 to 24 November 2006, respectively, and the report of the first global consultations on sickle-cell anaemia, held in Brazzaville from 14 to 17 June 2005,
Recognizing that education, information and communication technologies should play a crucial role in preventing sickle-cell anaemia and that there is an urgent need to create effective research and training programmes in the countries most affected by this disease,
1. Recognizes that sickle-cell anaemia is a public health problem;
2. Underlines the need to raise public awareness about sickle-cell anaemia and to eliminate harmful prejudices associated with the disease;
4. Encourages Member States, as well as United Nations agencies, funds and programmes, international institutions and development partners, to support health systems and primary health-care delivery, including efforts to improve the management of sickle-cell anaemia;
5. Invites Member States, international organizations and civil society to support the efforts being made to combat sickle-cell anaemia, including as part of health-system strengthening efforts, in the various development programmes, and to encourage basic and applied research on the disease;
6. Urges the Member States in which sickle-cell anaemia is a public health problem to establish national programmes and specialized centres for the treatment of sickle-cell anaemia and to facilitate access to treatment;
7. Requests the Secretary-General to bring the present resolution to the attention of all Member States and organizations of the United Nations system.
1 Resolution 2/7 A (III).
2 See A/55/240/Add.1, annex.
The World Health Organization (WHO) has started work to promote a world wide agenda to address hemoglobin dysfunctions.
WHO has made a commitment to:
· Recognize that sickle cell disease is a major health issue.
· Increase awareness of the world community regarding sickle cell disease.
· Eliminate harmful and wrong prejudices associated with sickle cell disease.
· Urges member countries where sickle cell disease is a public health problem to establish health programs at the national level and operate specialized centers for sickle cell disease and facilitate access to treatment.
· Promote satisfactory access to medical services to people affected with sickle cell disease.
· Provide technical support to all countries to prevent and manage sickle cell disease.
· Promote and help research to improve the lives of people affected with sickle cell disease.
The World Sickle Cell day is celebrated across the globe with special emphasis in African Nations and Asia. The celebrations include a press, media campaigns, music shows, cultural activities, and talk shows.
The main emphasis is hence on educating medical professionals, care givers, and associated personnel about prevention, research, and resources to minimize the complications due to sickle cell disease. Hence June 19th is devoted mainly to spread awareness, through talks, seminars, pamphlets, literature and consultations.
This web site is created to share our World Sickle Cell Day Communities information.
To learn more about Sickle Cell Anemia/Disease/Trait and how you can help those diagnosed, please visit : Feel free to email Nita at: AA4SCDAwareness@aol.com
Feel free to email Nita at: AA4SCDAwareness@aol.com
Please help me to help our SC Community!!! ALWAYS remember that this is NOT a "ME" thing, it is a "WE: thing!!!
Nita Thompson, Chair
African American Blood Drive and Bone Marrow Registry for Sickle Cell Disease Awareness
June 19 World Sickle Cell Day
Here are some suggested SCD Awareness activities you can do to acknowledge the June 19th UN resolution “recognition of sickle-cell anemia as a public health problem!”
Small Scale ~ Not Much Planning
Blood Drives (Hospital or in the community)
Marrow Registration Drives (Hospital or in the community)
General conversations with people
SC Awareness Surveys or Questionnaires
Share the UN Resolution in a newspaper or read out loud
Educate people that SC is in every race
Medium Scale ~ Planning
A press conference with 4 areas of focus:
Large Scale ~ Much Planning
Comedy Clubs presenting: “Laughing in Crisis!”
Awareness Benefit Concerts
A Sickle Cell World Day (WSCD) Festival that will feature food/non-food vending, performances and presentations, and enlist locally based or invited entertainers and athletes to participate as well.
More WSCD suggestive activities:
1) If you want to start a quilt made out of colored card stock cut into 4 equal pieces, markers & color pencils, stickers, etc., that is what we started for an online quilt project. People write messages, draw pictures, give hopeful messages, etc. It's fun, creative @ everyone can do it! You can find pic examples on the http://www.aablooddriveandmarrowregistry4sicklecellawareness.webs.com web site!
2) Bean bag toss I call "Luck of the Draw" that is a tool used to see the chance of someone being born with SCT/SCD or not. You make a blue and pink bean bag. You have a person stand with their back towards a card/wooden board square. Spin them around twice place them back to the position with their back to the card board and have them toss both bean bags over their head and see where it lands. You can even have someone move the board around.
What it shows is purely it is the luck of the draw~ lack of control about, what their child might be born with.
You can make several boards, front and back to show the pundents square. You can make it anyway you want to
3) There is also an education wheel you can make. You can have it made out of wood or purchase one. You can find the wooden model online http://m.wikihow.com/Make-a-Prize-Wheel. You can create questions to ask, and each person can answer one or some. You can give a prize or prizes depending on the correct number of correct answers!
There are many more suggested ideas, if you care to share please do!!!